Thursday, May 28, 2009
How many children in America are on ADD/ADHD medicine? How many get diagnosed in a given day? Tons, right? So you would think a trip to the pediatrician with a pretty indicative Connors Rating Scale would result in a diagnosis and treatment of ADD. Nope, not in our world.
Dr. Perez looks at Zach's Connors and says, "Wow! He's really high in most areas."
Hmmm... ask his teachers - they will tell you he is off the charts.
Then Dr. Perez says, "I want you to go to Dr. So-and-so. He is the best neuropsycholgist around. Or wait, maybe you should go to Dr. Tridas the best developmental pediatrician around. Maybe he can get to the bottom of this."
Ugh. I just wanted some Ritalin. What's so tough about that?
Zach, at the ripe old age of 7 has seen 2 school psychologists. One of them told me his IQ was 42. Uh-huh, sure. Zach has been to 2 behaviorial pediatricians. Both of whom are well regarded in the field. One was unable to get anywhere with Zach and the other died. So is this new guy going to really tell me something? Figure something out? I am not feeling to positive about this.
Like I said, I just want some Ritalin so the child can focus enough to write his name! The med is given in Pez dispensers at school... Why is this so difficult?
So now I begin the hurry-up-and-wait game with another specialist. Hurry and call for the appointment. Wait 6 months until you can get in. Hurry and get there. Wait for the results. Hurry and get there. Find out nothing new. Hear the standard, "I dunno."
We have seen the following doctors and gotten nowhere: 2 geneticists, 2 neurologists, 1 cardiologist, 1 pulmonologist, 2 psychiatrists/developmental pediatrician, 3 opthamologists, numerous MRI's and EEGs, and I know I am missing a few. These people get seen at least once a year and they are all in Tampa. But no one knows what is up with the kids.
I am getting frustrated, really, really frustrated. And that is why my tone is quite sarcastic. All I want (for now) is some ritalin. Because each day that passes that Zach is not able to focus, he gets further behind. He can't afford to get anymore behind!
Oh and then - I go to pick up Ryan afterschool and Zach is with me. We are walking up the sidewalk to the building and some kid says to the group of kids standing around, "Oh, here he comes. Yuck. It's Zach." I glare at this child. The other kids just ignore the comments. So the kid goes on, "He drools. Gross." I glared even harder. I wanted to chew him out, but knew I was not going to say what I wanted to say very well, so I ratted him out to a teacher at school. The worst part, the kid is the son of the ESE Liason. The person who is supposed to champion special needs kids. Hmmm... When does it get easier?
Wednesday, May 27, 2009
Today was one of those mornings where I had a million things to do before I got the kids out the door. When Mark is gone, it is always a race to get out the door and today was no different... [I will spare you the details, but I think you can get a pretty good idea of what I'm talking about...] As I am ready to leave, Zach has an accident. Actually, an accident is being kind - he KNEW what he was doing was wrong - that's why he was hiding from me... But it wasn't any tiny problem - he had eaten about half a watermelon the day before. So I had to quickly get him a shower and get out the door. We made it, barely, but it made me REALLY grumpy. He is almost 8 years old and I am still battling the potty...
You can imagine my mood when we are driving to school. Zach is whimpering because I did not help him get his shoes on and he thinks this task is too hard for him. (It's not, he does it all the time.) So again, you can imagine my mood spiraling down even more.
I just want to know when Zach will get control of his bowels. (Am I really blogging this??) I am so tired of the constant wondering if he will ever learn! So when a friend complained that it took 6 months to get her son trained,
But I do understand hamsters a bit better... (see if you can figure out why!)
Obviously, this potty training technique is not working. Any suggestions on potty training a mentally handicapped child with low muscle tone? Because I have two of them and my method is clearly not working... In the meantime, I better spend more time in prayer so that I can get a handle on my lack of patience and control my tongue a bit better! Not to mention, apologize for losing it.
Sunday, May 24, 2009
So what does this have to do with moving to a deserted island? Well, after the game, we headed to Bayfront Park and looked at boats and eventually ended up on a very crowded playground.
Zach and Ryan immediately started climbing and having a grand 'ole time. At one point, Zach stopped near this climbing thing-a-ma-jig (really, that's what it is called) and this kid pushed past him. Zach stopped, stared at him and then kept playing. I looked at Mark and asked him, "Do you think Zach knows he is different and do you think he cares?"
Mark and I decided that yes he probably knows he is different but probably doesn't care yet. But at some point, he is going to care and his feelings are going to be hurt and this crushes me. I know every child gets teased and made fun of, for some reason this really bothered me and made me want to cry.
So here I am at this crowded playground getting all upset about something that has happened yet, but is bound to happen. Not to mention, happen to every child on the face of the earth. I worry that is going to happen more often and more meanly to Zach and Ryan. I pray that it doesn't, but how do you explain that to your kids - especially when they are going to live with their disabilities forever? How do you reassure them when you want to go after the kid who said it?
Even grown ups tease them. Just yesterday at church someone saw Ryan in the goober hat and said some comment about being in the militia. I took the high road and ignored it, but I wanted to go up to him and have a few words. I know they would not have come out in love, so I pretended not hear it. I know he was trying to be funny, but it wasn't...
I think the hardest part of having two "special needs" kids is not being able to protect them from the extra teasing, stares, and thoughtless comments they will certainly endure. I can live with the not talking, the eating 3 things only, the poor walking, the falling all the time, the seizures, and autistic like actions. But I can't live with people being mean to my kids and "not getting it." It's like I told a bunch of kids at church, I don't expect you to be best friends with Zach and Ryan, but I expect you to be kind.
Since I can't bring civility to everyone my kids encounter, I've come up with a fool-proof plan... My solution is this... move to a deserted island. Anyone have one we can borrow?
Thursday, May 21, 2009
This morning driving into work, "Enough" by Barlow Girl was blaring out of my
Monday, May 18, 2009
My husband does NOT eat peanuts IN THE SHELL and he most certainly did NOT teach Ryan to do the same thing. No one in their right mind needs that much fiber.
Tuesday, May 12, 2009
Sunday, May 10, 2009
I did NOT ask for an afternoon to myself as my mother's day gift. I mean isn't the purpose of Mother's Day to spend time with the family? I did NOT go to the beach with two magazines and a book. Later I did NOT go to my favorite location... BARGIN BARN to find things to resell. I did NOT find a pair of Crocs in my size!! You're right, I didn't... I found two pairs!!
I did NOT laugh my head off when my sister in law sent me this video. I KNEW I would make mother of the year.... Click here to see my award announced on the news!!
talent show. His talent? Sticking his legs in the air. No, he didn't tumble, he didn't stand on his head, he laid on the mat and stuck his legs in the air. I am NOT the proudest mamma in the world.
But once he started showing off his talent, he did NOT want to get off the stage. He even took the mike from the emcee and start talking to everyone. He is NOT just like his mom - he does NOT love to be the center of attention!
I did NOT tell the whole world (virtual and real) about my friend and her game of "I Spy." I did NOT resist the temptation to give her more appropriate equipment to use in her next game. I did NOT want to put a bunch of papertowel tubes all over her office...
I did NOT get great pleasure out of watching my 7 year old play with a remote controlled fart machine. I did NOT think that we have made great strides in his speech/potty training when he walked around and asked everyone if they had to go to the bathroom. I did NOT further laugh at my children when the 4 year old wanted a turn but didn't get what was so funny after he pushed the button a few times. The machine is NOT going to work with me tomorrow!!
There is so much more to deny, but I'm stopping here... Stay tuned to next week!
Wednesday, May 6, 2009
IF YOU ARE SQUEAMISH, EASILY GROSSED OUT, AND DON'T LIKE READING ABOUT BODILY FUNCTIONS... STOP RIGHT THERE. CLICK OUT OF HERE. CHECK BACK IN A FEW DAYS. ONE OF MY STORIES IS A LITTLE GROSS...
Ok, still reading? The first story requires some background. My school has a separate school on campus for students who are "emotionally handicapped" or "EBD" (I forgot what those letters are for) but basically these kids got sent to this school because they couldn't handle it in the regular school. This school has kids grades k-8.
Our k-2 kids were lined up near the office, waiting on their teacher. My friend, we'll call her Mrs. X, works with these kids as the speech/language therapist. She notices the kids and sees that one of them is peering through what appears to be a rolled up piece of paper. She says, "Oh, let's play I Spy." And proceeds to engage this class of 5 kids in a riveting game of I Spy.
The classroom teacher, we'll call her Mrs. Y, comes out of the clinic and sees this. She asks, "Little Johnny, where did you get that?" And she points to the tube.
Little Johnny (why is he always the one??) starts squirming and says, "I don't know, I just found it."
Mrs. Y questions again, "You don't know where? Did you get it out of the trash?"
Little Johnny keeps squirming and finally says, "Yes."
Mrs. Y takes it from him tells him not take to play with stuff from the trash can. And then turns to Mrs. X and asks, "Do you know that is? It's from a tampon!!"
Yes friends, these kids were playing a riveting game of "I Spy" using the tube from a tampon.
I think this is hilarious - but yes - it is gross too. Oh, and Mrs. X did not have her glasses on, so she could not see exactly what it was - it looked like paper to her...
I will save my other story for another day... It is really not as funny as this!!
Monday, May 4, 2009
We'll start with MckMamma... I have NOT been following her harrowing adventures with her son Stellan as he struggled with SVT and heart issues. I was NOT praying for baby Stellan and the rest of her family. And her updates did NOT prompt me to pray for the other babies in ICU that she was able to meet. And, ok, I will NOT be honest... I was NOT a little jealous that she has literally thousands and thousands of people praying for her kids. How UNcool would that be to have so many people praying for my boys? Anyway, my boys are NOT in a good spot right now... [I hope I didn't just jinx us... Although I don't believe in jinxes - you know what I mean, right?]
Anyway, I did NOT have a lovely weekend of doing NOTHING! I did NOT finish my 2008 scrapbook on Friday night - ok, so I still do NOT have to update Ryan's scrapbook, do Zach's 2nd grade year and we are 5 months into 2009... During my lovely weekend of NOTHING, I did NOT cut my kid's hair and royally screw up Zachs. I should have taken a picture, but it's awful... I did NOT crop the back too much and I did NOT give him this weird red-neck look at the ears. I am NOT kinda thankful for the goober hat at school - maybe the bad 'do won't be seen??
I did NOT wake up this morning and decide that if I NEVER, EVER, EVER run a marathon again that would be fine. I did NOT realize that training for that stupid thing was a burden and unfun. So I did NOT vow to not even use the marathon word in reference to the future ever again. NOT speaking of marathons... I did NOT have to share my experiences with three groups of students. I did NOT feel weird for not being more proud of myself for even getting out there. I do NOT feel like a loser because I had to walk half of the stupid thing. I should be more thrilled that I accomplished something I didn't think I could. I should NOT worry/focus/perseverate about/on the 100 years it took me to finish.
And... I did NOT laugh when a kid told me ran 20 miles on his treadmill. I know my five mile run this morning felt like a marathon, so I can actually relate. And... I was NOT super impressed by some of the kids I talked to - they were such good listeners and such sweethearts. Two boys actually congratulated me and shook my hand when I saw them on campus later. You know, I spend so much of my time dealing with kids who are struggling and when you see these same kids act like a million bucks, it really does NOT bring tears to my eyes.
Oh, and I do NOT look like a leper with my skin flaking off on my shoulders. Because I take such good care of my skin, I would never have such a bad sunburn that it would take 5 days to "turn to tan".
I have NOT gotten into this "grocery game" of saving money and buying stuff when it's super cheap. I did NOT drag Zach to Albertsons so I could buy cheap milk, chicken breasts, and a loaf of bread. I am NOT going figure out how to use coupons better and all that good stuff. I do NOT wish I lived in a place that doubled coupons. How wrong is that??
And I will NOT not keep boring you with my confessions. I am NOT at work right now without any pictures to add... So if you want some pictures, scroll down and see me breaking child labor laws...